Angel Hands Hospice and Palliative Care

Resources

Resources

What are Advance Directives?

Advance directives are legal documents that allow you to outline your preferences for medical care if you’re unable to communicate those decisions yourself. They ensure your healthcare wishes are respected during critical moments. At Angel Hands, our social workers are here to help guide you through creating advance directives and can assist with necessary documentation, including Medical Power of Attorney and DNR orders.

There are 3 main types of advance directives:

    • Living Will: This document specifies the types of medical treatments you would or wouldn’t want if you’re incapacitated. It can include preferences on life-sustaining treatments like mechanical ventilation, feeding tubes, or resuscitation efforts.
    • Durable Power of Attorney for Healthcare: This document allows you to appoint someone (a proxy) to make financial & legal decisions on your behalf if you’re unable to do so. This person acts in your best interest, based on your expressed wishes.
    • Medical Power of Attorney (MPOA): This form allows you to appoint someone to make healthcare decisions on your behalf if you’re unable to do so. Unlike a Durable Power of Attorney (DPOA), which focuses on financial and legal decisions, the MPOA is specifically for healthcare-related choices, ensuring your medical care aligns with your wishes. Our social workers can assist in setting this up to ensure clarity and confidence during the process.
What is a DNR (Do Not Resuscitate)?

A Do Not Resuscitate (DNR) order is a medical directive that instructs healthcare providers not to perform CPR (cardiopulmonary resuscitation) if your heart stops or if you stop breathing. This decision is often made by individuals with terminal conditions or those who wish to avoid aggressive life-saving measures. Our social workers are available to help patients and families understand and process the decision to implement a DNR, though we never pressure or force anyone to make this choice. We are here to educate and inform so you can make the best decision for your situation.

    • Out-of-Hospital DNR (OODNR): This is a special type of DNR order that applies to situations outside of a hospital setting, such as in your home or at an assisted living facility. It’s important to distinguish between a standard DNR, which is usually honored only in hospitals, and an OODNR, which ensures that emergency responders respect your wishes even outside of medical facilities.
    • Why Consider a DNR?: While making decisions like DNR or OODNR can be difficult, some individuals choose it to maintain comfort and avoid invasive interventions that may not improve quality of life. This can be an important step in focusing on comfort and dignity in end-of-life care, but it is always your choice, and we are here to help you make informed decisions.
Alzheimer’s Association

The Alzheimer’s Association is a leading voluntary health organization in Alzheimer’s care, support, and research. They provide essential resources for those diagnosed with Alzheimer’s and their caregivers. Services include:

    • Caregiver Support: Offering support groups, training, and educational materials for caregivers.
    • Education: Resources that help families understand the disease and navigate the journey of caring for someone with Alzheimer’s.
    • 24/7 Helpline: The association offers a helpline (1-800-272-3900) that’s available anytime for support and guidance.
    • Research and Advocacy: Funding research to better understand Alzheimer’s and working toward a cure.

You can find more resources and information by visiting alz.org.

Alzheimer’s Foundation of America

Website: alzfdn.org
The Alzheimer’s Foundation of America supports individuals and families affected by Alzheimer’s disease. Their resources include a helpline for caregivers, educational materials, and community outreach programs. They aim to enhance the quality of life for those impacted by Alzheimer’s through advocacy, support, and education.

National Hospice and Palliative Care Organization (NHPCO)

Website: nhpco.org
The NHPCO is the largest nonprofit organization representing hospice and palliative care providers in the United States. Their website offers extensive resources for patients and families, including educational materials, information on hospice services, and advocacy initiatives. NHPCO’s mission is to promote quality end-of-life care through education and resources.

American Cancer Society

Website: cancer.org
The American Cancer Society offers comprehensive support for individuals affected by cancer. Their website provides information on treatment options, support groups, and palliative care resources. They aim to improve the quality of life for patients and their families through education and community support

National Institute on Aging (NIA)

Website: nia.nih.gov
The NIA is a leading authority on aging and Alzheimer’s disease. Their website contains valuable information about aging-related health issues, including dementia care and resources for caregivers. They also provide research updates and educational materials to help families navigate the challenges of aging and cognitive decline.

Patient Advocate Foundation

Website: patientadvocate.org
Patient Advocate Foundation offers free case management services to assist patients in accessing care and navigating the healthcare system. Their website provides information on financial assistance, insurance issues, and other resources to support patients facing serious illnesses.

Grief Support Resources

GriefShare

  • Website: griefshare.org
    GriefShare offers a network of support groups for individuals grieving the loss of a loved one. Their programs provide a safe space for sharing experiences and finding comfort through the grieving process.

 

The Compassionate Friends

  • Website: compassionatefriends.org
    The Compassionate Friends supports families who have lost a child, offering resources, support groups, and community events. Their mission is to help families heal and find hope after experiencing this profound loss.
Medicare Rights Center

Website: medicarerights.org
The Medicare Rights Center is a nonprofit organization that offers information about Medicare coverage, including hospice services. Their website provides resources for beneficiaries to understand their rights, access assistance, and advocate for themselves within the Medicare system.

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